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MANAGEMENT OF NEUROMUSCULAR DISORDERS IN CHILDREN‚ A multidisciplinary approach to management

MANAGEMENT OF NEUROMUSCULAR DISORDERS IN CHILDREN- A multidisciplinary approach to management-9781911612087
  1. Autor:

    Deconinck

  2. Isbn:

    9781911612087

  3. Páginas:

    468

  4. Año:

    2019

  5. Edición:

    1

  6. Idioma:

    Ingles

  7. Disponibilidad:

    De 7 a 10 Días

Precio s/iva:

96.05 €

91,25  €
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DESCRIPTION:
This book is the first to provide comprehensive information in one place on the management of neuromuscular disorders (NMDs) in children. Written by experts from the international NMD community, this volume describes the natural history of the most frequent NMDs, such as Duchenne muscular dystrophy spinal muscular atrophy, hereditary neuropathies, congenital and metabolic neuropathies and myasthenic syndromes.

Best practice management of key functions typically affected by NMDs, such as, cognition and mental health, respiratory function, gastrointestinal, nutritional and cardiology management is provided. Sexual issues and transition to adulthood are also discussed. The final part of the book provides a critical review of new evidenced-based management approaches to NMDs. The large number of healthcare professionals involved in managing children with NMDs will find this a useful one-stop reference resource.

CONTENTS:
Section A: Introduction
1. Parent Perspectives on Neuromuscular Disorders: From Diagnosis, to Parenting and Living With, to Advance Care Planning and Preparing for Death
2. The Importance of Setting up Guidelines for Neuromuscular Disorders
3. A Multidisciplinary Approach and Management as Best Care Model in Neuromuscular Disorders
Section B: Assessment of a Child with a Neuromuscular Disorder: The Cornerstone for Management
4. Clinical Evaluation and Diagnostic Approach
5. The Importance of Evaluating Function in Neuromuscular Disorders
Section C: Overview of the Most Frequent Neuromuscular Conditions in Children and Disease Specific Medical Management
6. Spinal Muscular Atrophy and Other Motor Neuron Diseases
7. Inherited Neuropathies
8. Acquired Neuropathies
9. Disorders of the Neuromuscular Junction: Inherited Myasthenic Syndromes and Juvenile Myasthenia Gravis
10. Duchenne and Becker Muscular Dytrophies
11. Limb Girdle Muscular Dystrophies
12. Congenital Muscular Dystrophies
13. Facioscapulohumeral Muscular Dystrophy
14. Congenital Myopathies
15. Myotonic Dystrophies
16. Pompe Disease
17. Mitochondrial Disorders
18. Channelopathies
19. Inflammatory Myopathies
Section D: Physical Rehabilitation and Orthopaedic Management
20. Lifelong Physiotherapy: Staying Active
21. Management of of Contractures: Stretching, Positioning and Splinting
22. Occupational Therapy and Robotics
23. Orthopedic Complications in Neuromuscular Disorders
24. Neuromuscular Scoliosis
Section E: Respiratory Management
25. Assessment and Management of Respiratory Function in Children with Neuromuscular Disorders
Section F: Feeding and Gastrointestinal Management
26. Gatro-intestinal Complications and Nutrition
Section G: Cardiac Management
27. Cardiac Management in Children with Neuromuscular Disorders
Section H: Psychosocial Aspects
28. Cognitive, Behavioral and Psychosocial Aspects of Growing Up with a Neuromuscular Disease
29. Transition to Adulthood
30. Sexual Health Needs in Patients with Neuromuscular Disorders



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